Thursday, October 30, 2008

Keep forgetting...

You know, I have been so excited about the weight loss (which, by the weigh, according to the scale at the hospital today is at 17 lbs) that I have neglected to tell you about anything else that has been going on with my health.

So, here goes...

My energy is still maxing out. I can tell you that, yes, I have had a few days of 'just plain tired', but if you knew the life that I lead, you would understand. Flash back to my life a year ago and WOW, what a difference. There is no way that I could have been holding up to the schedule that I have been keeping. It is crazy and quite frankly, I need to slow down. Just for my own sanity. I need to just breathe. But, at the same time, it is exciting. My kids love seeing me hanging out at their school. I spent the last 5 days on their morning announcements dressed like a scarecrow. They loved it. When the Fall Festival was over, Gracie was actually disappointed to find out that I wasn't going to be there anymore. I heard that she actually waved at me the first morning (me, on TV). These are things that I never could have had if my health had remained the same. My children would not have the memories that I am helping them to develop. I am thankful for Xocai.

Here's another big kicker, I saw my neurologist on the 23rd. He is a new doctor for me. My old one (and the one before him) left town. I seem to have that effect on neurologists. It could almost give a girl a complex. So, anyway, here I am at my appointment explaining to the new guy about my symptoms and how I was feeling. Of course I have to tell him that I am feeling great. I even have to tell him that I have all but stopped taking my meds. To this he replies that perhaps I really don't have myasthenia gravis. And, in a way, I'm OK with that. But then there's the other side of me who knows what I have been experiencing for the last 4+ years. There's a side of me that remembers clearly the feeling of lying down to bed at night and not truly knowing if I would wake up in the morning. And that side of me just has to ask, "if it wasn't MG, what was it? And more importantly, is it gone?" There's a side of me that thinks, could chocolate have really cured me? I mean, it seems truly illogical. But, all I know is that I feel better. Actually, I feel great. And for that I am greatful. I will not complain. I will eat my chocolate and be happy.

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